First…let me just say that Lupus sucks.
I am in a battle with insurance and secondary co-pays with my Actemra shots. I have been without my shot for two weeks, and I can honestly say I haven’t felt this bad in a long while. I have five mouth sores, swollen joints and severe fatigue.Ugh. I have to function. I have to go to the max every day. I can’t have this happen. What makes me even more frustrated is the fact that I can’t contact the insurance companies but during the day–my work day!Can someone say “screw me”?! But really though!!
Life in the moment: I am tired, fatigued, I hurt…physically…emotionally drained..and completely done with insurance. I have borrowed spoons for the week from next week, and not sure how many I have left.
Had to vent…sorry…but thanks.
I have been wanting to get a tint on my brow and lashes for a while now. I finally did it last Saturday! My before picture with no makeup. Again no makeup, but my after!! So excited. I won’t have to bother with a makeup pencil or doing anything with my lashes. This is huge for me especially due to my Sjogrens (my eyes are extremely dry and wearing makeup increases the dryness). This next picture was immediately after having the tint done. I didn’t want to wash it for a while as the longer you wait the LONGER it will last.And then after washing my face, and again with no makeup!! Super happy! I didn’t have to spend time in my brows, or feel like I have to wear eye makeup just to feel put together. This may only last a month or even a few weeks, but so worth it for me.
What is something that you do just for you that makes you feel wonderful?
to blog on Friday…
Yep…completely got away from me…and I thought I had prepared enough for the week. Apparently not. So this is for Friday.
So…blessings for those who forget, and for those who don’t.
One of the many auto-immune disorders I have is Sjogren’s Syndrome, and April is its awareness month. I won’t fill the month with information on it, but wanted you to be aware of some of the many symptoms people may suffer.
If you would like more detailed information about the syndrome or how to get involved please click here: Sjorgren’s Syndrome Foundation
Thank you for taking the time to read this. Have a good Thursday!
I do this weekly.
It stings, but doesn’t hurt. I hate doing this, but I know it helps me.
Lupus, Rheumatoid Arthritis, Sjogren’s Syndrome, Raynaud’s Syndrome—crap. So…life.
World Sjogren’s Day
Sjögren’s (pronounced SHOW-grins) is a chronic autoimmune inflammatory disease in which people’s white blood cells attack their moisture-producing glands. Four primary symptoms include fatigue, joint pain, dry eye and dry mouth, but Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system.
With upwards of 4,000,000 Americans suffering from Sjögren’s, it is one of the most prevalent but less known autoimmune disorders. This is because Sjögren’s is not a “cookie-cutter” disease, often being overlooked or misdiagnosed since symptoms can manifest in various ways and affect every patient differently.
I have had Sjogren’s for about 7 years (tested positive). My main compliant is that my eyes are so dry that I have to have eye drops and antibiotic cream on my eyes daily. Oh, and the fatigue. I have most of the symptoms listed, but they are moderate in levels. They are more apparent in my times of major stress. But most have been manageable especially since I have had weight loss surgery. Just being able to move more has helped my overall physical symptoms.
So…thank you for reading…and I hope I have brought a small amount of awareness to Sjögren’s today.
I have been praying for answers for a long time now. I think we all do, in all aspects of our lives. I have been diagnoised with Lupus in May of 2008. Lots of steps in that direction, and more confusion. Yesterday I was diagnoised with Sjogrens Syndrome, and Raynauds. My new doctor is wonderful and ended my session with “you are weird.” Really? I have known that for a long while. I start Methotrexate tomorrow, and I am terrified. Terrified of what it will do to my body, and terrified what this disease has already done to my body and mind. I am positive to everyone, the majority of the time. God has provided me with a tremendous peace, and I do my best to portray God’s peace. It is so hard. Hard. I so want to scream, and kick, to be mad at God. Today, I had a precious friend call just to check on me. She cried when she heard what I am going through. I was strong with that conversation, but the moment I hung up, I cried. Terrified once again. I believe that I am saved by grace, and will be healed completely. There are moments of doubt when I try to control, but I come back to rejoicing in the Lord. Always. Phil. 4:4. Answers are only the beginning. Blessings. Jerry Ann